Young Epilepsy Case Study: Purple Day

“My name is Olivia and I am 19 years old I was diagnosed with Juvenile Onset Absent Epilepsy (one of the 40 different types of epilepsy) in 2011.

I look normal but I can’t go out alone. My seizures are mostly triggered by public transport and rides, I suddenly loose awareness and don’t know where I am, when it’s at its worst I wet myself. I also suffer from Autism and Anxiety which are conditions that are commonly linked to epilepsy and make the outside world difficult for me.

Since turning 18 I am expected to be independent but my support at college has stopped. I want people to know that epilepsy is a very complicated condition and not everyone diagnosed has drop (tonic-clonic) seizures, there are many young people like me.”

Watch our film to find out about a child’s experience of an absence seizure

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